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Barbara Purin is graduated in Mathematics at the University of Trento (Italy). Since 2002 she has been working at the Telemedicine and Medical Informatics Laboratory of the Centre for Scientific and Technological Research (now e-Health Applied Research Unit at the Bruno Kessler Foundation). The activities of the Research Unit cover basic and applied research in the field of consumer health informatics and user-centred design in health information systems. Her research interest focuses mainly on designing and conducting usability tests of innovative PHR prototypes and then on analysing the collected data. The basic challenge is to design effective PHR interface and services for the clinicians and patients benefit.
B. Purin; E.M. Piras,Personal Health Records among Institutions, Medical Records, and Patient Wisdom: A Socio-technical Approach,E-Health 2010,berlin,springer,2011, pp. 151 -158
Enrico Maria Piras; Barbara Purin; Marco Stenico; Stefano Forti,Prototyping a Personal Health Record Taking Social and Usability Perspectives into Account,Electronic Healthcare,Berlin, Heidelberg, New York,Springer,2010, pp. 35 -42
B. Purin; E.M. Piras,Personal Health Records among institutions, medical records, and patient wisdom. A socio-technical approach,Springer,2010, (3rd International ICST Conference on Electronic Healthcare for the 21st century,Casablanca, Morocco,da 12/13/2010 a 12/15/2010)
A. Moser; M. Clerici; B. Purin; EM. Piras; S. Forti; P. Laurino,TreC study: personal health record for patient empowerment,Many studies have demonstrated that patients involved in their health care management have better outcomes compared to those who are not involved and the Personal Health Record (PHR) seems to have great potential in improving the patient empowerment.
In this context we would like to present a web-based PHR System called 3C (Cartella Clinica del Cittadino).
The project, funded by the Provinci Autonoma ot Trento (north-eastern Italy with around half a million inhabitants), is developed and managed by the Bruno Kessler Foundation (FBK) and has, among its partners, the School of Vocational Training for General Practitioner (GP). The System will become a service offered by the APSS (local public health service).
This web-based PHR is a platform of services and applications, designed around four main activities: health information management, shared care with relatives and doctors, keeping all health practitioners informed, and patient-to-patient information sharing.,
The 3C System has three main features.
First of all it is an Electronic Health Booklet of medical reports, instrumental examinations and laboratory test results, available directly from health institutions.
Secondly, it is a Health Diary where storing personal observations about the personal story of life and illness; patients can decide to share this information with their relatives in order to support the active participation of their families in health care process. Finally the System aims to improve relationships and communication between patients and their health care providers (GPs and specialists).
We will report the results of the first period of test of the PHR on a sample of citizen living in Trento and on its outskirts, in order to assess its usability, acceptability and criticism.2010
Enrico Maria Piras; Barbara Purin; Marco Stenico; Stefano Forti,Prototyping a Personal Health Record taking social and usability perspectives into account.,ehealth 2009,Springer,2009, (ehealth 2009,Istanbul, Turkey,23/09/2009 - 25/09/2009)
Stefano Forti; Barbara Purin; Claudio Eccher; Nicolò Luppino; Carlo Busolin; Diego Conforti; G. Martini,Using Interaction Design to Improve Usability of a PHR User Interface Based on Visual Elements,Patient-Centered E-Health,Medical Information Science Reference,2008
Stefano Forti; Barbara Purin; Claudio Eccher; Nicolò Luppino; Carlo Busolin; Diego Conforti; Gianni Martini,Using Interaction Design to Improve Usability of a PHR User Interface Based on Visual Elements,Patient-Centered E-Health,Hershey, PA,Medical Information Science Reference,2008, pp. 127 -142
Barbara Purin; Emiliano Ricci,Medicine 2.0,Toronto, ON,2008, pp. 33-33, (Medicine 2.0,Toronto, Canada,04/09/2008 - 05/09/2008)
Tiziana Rancati; Laura Vera Righi; T. Magnani; R. Salvioni; D. Blasoni; Nicola Nicolai; S. Stagni; T. Torelli; S. Villa; N. Bedini; F. Valvo; C. Sangalli; E. Bajetta; L. Catena; G. Procopio; L. Gianni; G. Capri; S. Cresta; D. Tosi; C. Spreafico; C. Ripamonti; E. Fagnoni; T. Campa; N. Zaffaroni; A. Carbone; A. Pellegrinelli; M. Colecchia; A. Marrari; L. Rivoltini; S. Donegani; A. Spatuzzi; Stefano Forti; Claudio Eccher; Barbara Purin; Flavio Berloffa; R. Valdagni,E-prostate, an integrated e-health system for the multidisciplinary management of prostate cancer patients,1st European Multidisciplinary Meeting on Urological Cancers,2007, pp. 28-28, (1st European Multidisciplinary Meeting on Urological Cancers,Barcelona, Spain,02/11/2007 - 04/11/2007)
Tiziana Rancati; Laura Vera Righi; T. Magnani; R. Salvioni; D. Biasoni; Nicola Nicolai; S. Stagni; T. Torelli; S. Villa; N. Bedini; F. Valvo; C. Sangalli; E. Bajetta; L. Catena; G. Procopio; C. Spreafico; C. Ripamonti; E. Fagnoni; T. Campa; N. Zaffaroni; A. Carbone; A. Pellegrinelli; M. Colecchia; L. Gianni; G. Capri; S. Cresta; D. Tosi; A. Marrari; L. Rivoltini; S. Donegani; A. Spatuzzi; Stefano Forti; Claudio Eccher; Barbara Purin; Flavio Berloffa; R. Valdagni,e-Prostate, un sistema di sanità elettronica a supporto della attività multidisciplinare nella gestione integrata del cancro alla prostata,Archivio italiano di urologia, andrologia : organo ufficiale [di] Società italiana di ecografia urologica e nefrologica / Associazione ricerche in urologia,vol.79,n. 3 - Supplemet 2,2007, pp. 53-54